Today is “National HIV Testing Day”, so I’ll give my pitch on HIV testing – which won’t be quite what you hear from others…
For the most part, the people who die of AIDS these days are people who don’t get tested and don’t find out they’re poz until it’s too late for treatments to be effective. There’s no need for those deaths… None whatsoever.
If you’re worried what it will mean to test positive – give up that fear and go get tested. Becoming HIV positive today is not the death sentence it once was. In fact, there’s a good chance you’ll die of something else – like old age or in a car accident or something. But that’s not the case if you don’t get tested. Then the chances are you will die of AIDS.
In other words – don’t be afraid of HIV, be afraid of not knowing your poz.
You don’t have to get tested every 3 or 6 months unless you want to. The goal here is to catch your HIV before it starts doing really nasty shit to your body. You’re probably fine if you catch it within a year of infection – but definitely don’t wait more than 2 years between tests. There are strains of HIV that are more aggressive than others that need to be treated fairly quickly.
If it’s been more than a year since you had an HIV test, get tested this week…
Last night when I was laying on the floor playing with my dog I noticed a book on my shelf – “Epitaphs for the Living“. It was published in 1989 and I bought it shortly after I came out. It’s an incredibly somber book. Has pictures of people with AIDS with their hand written notes below the picture. I want to quote from some of them…
There’s a picture of two guys sitting on a bed. One has his arm around the other… Each gave their perspective, but one is especially poignant…
Life is such a precious gift! It has been very hard to watch life melt away from the one I love and I can do nothing but be there and love him with all my heart. I love you Pat.
Another picture is of a guy in a turtle neck most guys would say was pretty hot…
Thank you, Billy, for a beautiful photograph. Its how I want to be remembered; happy, attractive, self satisifid and content with lie. But in many ways the photo doesn’t look like me. · It doesn’t show the K.S. lesions growing on my face + body. · It doesn’t show that I am half blind · It doesn’t show the fact that I’ve had 3 bouts of Pneumocystis Pneumonia in the past year and a half · It doesn’t show the fear I have of what may happen to my health either tomorrow or 6 months down the road · It doesn’t show the sadness, not only my own, but the sadness I feel every time I walk down the street and see friends and acquaintances who have been diagnosed. · It doesn’t show the anger I feel at having about 1/2 of my life whipped out from under my feet at the age of 30. · It doesn’t show the great discontent and anger I have form our government for having ignored this epidemic for so long while people were dying in every city in our country. · It doesn’t show the great amount of love + compassion I feel from my family, community + friends. · And most of all it doesn’t show the tremendous need for all sexually active people to learn about AIDS to protect themselves and their loved ones so the y won’t have to go through my pain or the pain of so many others who have gone before me and will continue to go after me.
David Brewster
San Francisco, CA
Diagnosed Oct 31, 1986
Then there’s a photo of a guy sitting in a barber’s chair in what looks like the middle of a living room or sun porch. He looks about 40…
Sometimes I find myself siting all alone wondering, after two years since diagnosis, where I will find the strength to continue to live with AIDS. I think living with AIDS can be the hardest part, not the dieing [sic].
Johnnie
Then there’s a picture of a black man looking out a window at a hospital. He’s wearing a denim jacket and glasses…
Being tested HIV positive has not been easy. You can’t really set any goals, except to thank God for letting you see the breaking of a new day, a day that none of us have ever seen before. I take one day at a time and hope for the next day…
Jim
Then there’s a picture of a very weak looking guy named Dave in a hospital bed. His friend/lover is at the end of the room looking out the window…
I just wanted to say how scared I was, I’m so sick of being sick I can’t stand it. The cancer on my skin has gotten so bad I’m afraid to be seen in public. I thank God for the support of all my friends especially Ernie and Michael and to know that they are there. It’s just sometimes for me it’s hard. Its hard being the one that’s always smiling and saying everything is okay. Sometimes I feel like its not okay. After working all the years I’ve worked I finally made a name for myself. It’s all taken away. I don’t want to have to settle for that. People say you should be happy to be alive. This to me is not living. But I’ll be okay. I’ll go to sleep and wake up tomorrow and everything will be fine again.
When I found I had AIDS it didn’t bother me as far as knowing I was going to die. Dieing doesn’t scare me, but leaving my friends did. I was always afraid of what was going to happen. I guess I was still scared…
Dave died before the book was published. His friends transcribed his words from audio cassette.
Which reminds me, one of the things I wish I had done before my lover died was to record his voice. I’ve forgotten what his voice sounded like…
Damn… I’m sitting here barely able to see the screen through my tears. All of you guys who think I don’t remember what it was like – that I’m somehow spitting on the graves of those who died – fuck you. I do remember. It’s just things are very different now. Very very different.
That was a time of death. Now we’re in a time of living. A lot of people who went through that are still very angry and their fears about things like HIV are very deep seated. I get that – this post has been really difficult to write because I went through it too.
While things have changed, if you don’t get tested your experience will be like the guys above rather than the healthy poz guys you see around you living normal lives.
Please get tested… Know your HIV status so you can live a long healthy life…